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Karl Note: I do not claim to have a "cure" for this condition, but I do believe that the best non-drug early treatment would be the special herbal MSM especially formulated for this type of condition -- click here.
 NINDS
Syringomyelia Information PageReviewed 07-01-2001 Table of Contents (click to jump to sections) What is Syringomyelia? Is there any treatment? In some patients it may be necessary to drain the syrinx, which can be accomplished using a catheter, drainage tubes, and valves. In the absence of symptoms, syringomyelia is usually not treated. In addition, a physician may recommend not treating the condition in patients of advanced age or in cases where there is no progression of symptoms. Whether treated or not, many patients will be told to avoid activities that involve straining. What is the prognosis? What research is being done? Surgical techniques are also being refined by the neurosurgical research community. It is also important to understand the role of birth defects in the development of hindbrain malformations that can lead to syringomyelia. Dietary supplements of folic acid during pregnancy have already been found to reduce the number of cases of certain birth defects. Diagnostic technology is another area for continued research. contrast dyes. Patients can expect even better techniques to become available in the future from the research efforts of scientists today.
Select
this link to view a list of studies currently seeking patients.
American Chronic Pain Association (ACPA)
American Syringomyelia Alliance Project (ASAP)
Christopher Reeve Paralysis Foundation/ Paralysis Resource Center
March of Dimes Birth Defects Foundation
National Chronic Pain Outreach Association (NCPOA)
National Organization for Rare Disorders (NORD)
National Spinal Cord Injury Association
Paralyzed Veterans of America (PVA)
Spina Bifida Association of America
Spinal Cord Society
Related NINDS Publications and Information Syringomyelia fact sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Chiari Malformation (Arnold-Chiari malformation) information page compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Lay-language descriptions of new NINDS program announcements, requests for applications, and clinical studies seeking patients.
NINDS health-related material is provided for information purposes only and does not necessarily represent endorsement by or an official position of the National Institute of Neurological Disorders and Stroke or any other Federal agency. Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history. All NINDS-prepared information is in the public domain and may be freely copied. Credit to the NINDS or the NIH is appreciated.
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