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What is Lichen Sclerosus?

Write to Karl Loren -- he will answer

 

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[Karl Loren Note:  It may, sometimes, be true that a drug is the best treatment.  I start my advices with a preconception that there will always be something better than a drug.  In this case my advice is similar to what it is for other so-called "hopeless diseases."

I recommend a change in diet, a detoxification of the body, and an examination of the wrong relationships in the person's life.  Actual "treatments" should be done after these three senior factors are explored.  I would then suggest topical and internal usage of MSM, including MSM cream, called Calm Cream and Life Glow Basic.

The creator of Calm Cream lives in India. He is an Ayruvedic physician who reads the ancient Sanscrit texts from the Ayruveda. He is also a homeopathic doctor and regularly treats patients with both skills.

He is the owner of the factory that makes the MSM sold by Vibrant Life. He received a question about using MSM and MSM Cream (Calm Cream) for this skin condition.

The question indicated that the person asking had done a great deal of research on this skin problem. She asked certain questions about the proprietary nature of Calm Cream.

His answer provides valuable data about treatment. Click Here for that information on this page, below.

I believe that the above protocol will handle this situation completely.

___________________________________________________________________________

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Thank you for giving us your details.   

While I am unable to reveal or confirm the source of my Wax (as a rule for protecting our trade secrets) -- I can only assure you that -- you need to have no worries on that account.
Our CalmCream does not contain any chemical preservatives whatsoever.  CalmCream has been successfully used with excellent results even for new born babies facing difficult skin problems in the initial days & weeks of their life.  Hence you may use CalmCream with absolutely free mind -- without any worry for any kind of unpleasant reactions.  All active ingredients in CalmCream are individually edible.
We also make a product called "Herbal MSM", which contain concentrated Ayurvedic Herbal Extracts along with Pure MSM.  I suggest that you use our Herbal MSM with a dosage of 6 - 10g a day splitting to 2 doses -- once in the morning & once at night. 
One precaution that is needed while taking Herbal MSM is -- that it should not be mixed with any aerated soft drinks or canned juices which contain chemical preservatives. 
You may mix Herbal MSM with Pure Water or any Fresh Fruit Juice, and then slowly sip the juice allowing thorough mixing with saliva to allow activation of natural enzymatic reaction.  You will experience dramatic results with Herbal MSM which will be long lasting compared to just Pure MSM.

You can get your supplies of Herbal MSM from my Partner / Agent in USA.  A copy of this mail is going to my Partner -- Mr. Karl Loren,

Ayyangar

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________________________________________________________________________________________

Note Lichen Planus and Lichen Scherosus are virtually the same.]

Lichen Sclerosus

Photo

What is Lichen Sclerosus?

Child sexual abuse enquiries and unrecognised vulval lichen sclerosus et atrophicus

Lichen Planus


Source

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Background

Lichen sclerosis et atrophicus (LSEA) is a relatively common skin condition. It is more common in women, commonly found on genital skin. Itching and soreness are common findings. There may be an association with autoimmune diseases.

TREATMENT

Potent topical steroid ointment (clobetasol proprionate 0.05%) daily for 3 months is the treatment of choice for vulvar LS at all ages

[Karl Note: This is the usual drug approach and will prove to be harmful to anyone who uses it. The proper treatment is described above.]



 

Source

Dept. of Dermatology - University of Iowa College of Medicine

Lichen Sclerosis et Atrophicus (LS&A) - Peri-umbilical Abdominal Skin Fold
 

 

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Lichen Sclerosus
By Dr Rob Hicks

What is Lichen Sclerosus?
Is it easy to diagnose?
How are people affected?
How do you treat it?

If it's estimated that a disease affects up to one in three people around the world you would expect to have heard about it, wouldn't you? Perhaps it's because people feel embarrassed, perhaps it's because it's not often diagnosed correctly, perhaps it's because it's difficult to treat? Whatever the reason Lichen Sclerosus exists and causes misery for many.

What is Lichen Sclerosus?

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Lichen Sclerosus is a skin condition that causes inflammation and often intractable itching for long periods of time. Most commonly it affects the skin around the genital and anal areas. There's actually very little known about it considering it was first reported over a hundred years ago in 1887.

It's estimated to affect up to one in 300 people around the world, the majority of these people being women over the age of fifty. Men are much less often affected than women and occasionally children develop it too but this isn't common.

At present there is still much speculation around what exactly causes Lichen Sclerosus. Many theories have been put forward suggesting that there's a genetic susceptibility and that infection may trigger its development. There also appears to be a link with other auto-immune conditions, for example thyroid disease. However, none of this is carved in stone.

Since Lichen Sclerosus affects such a sensitive area of the body it's important to point out that it's not infectious, not sexually transmitted, and nothing to do with poor hygiene.

Is it easy to diagnose?

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Sadly many people may suffer the traumatic symptoms of Lichen Sclerosus for months, sometimes years, before it's correctly diagnosed. Making the diagnosis is not easy and often it's thought to be eczema or thrush and treated as such. If vulval itching is present for over a year then the opinion of a dermatologist should be sought. It's here that the diagnosis can be reliably made by taking a biopsy under local anaesthetic in the hospital outpatients' department. Top of Page

How are people affected?

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Lichen sclerosus facts
1. Affects up to 1 in 3 people

2. Cause unknown

3. Women affected more than men

4. Genital area / anal area most affected

5. Women sufferers need screening for vulval cancer

6. Symptoms best controlled with steroid creams

7. Damaged skin prevents normal sexual intercourse, bowel opening, and urination

8. Causes chronic itching and discomfort

9. No cure

Some people have the condition and suffer no symptoms at all. Many however suffer agonising itching and discomfort.

Women are affected most often around the vulva where the skin becomes white and thickened. It scars making the vulva shrink in size and the vagina tightened. This makes having sexual intercourse extremely difficult and painful and many women describe how they have to put up with an "enforced celibacy".

Similar effects occur around the anus. This makes normal bowel opening uncomfortable, often resulting in small tears which can be exquisitely sore.

Whether these damaged areas are scratched or not they are often accompanied by blisters and sores that are susceptible to the further problems of infection and thrush.

For men it's the tip of the penis that is most often affected. It too becomes firm and white and narrowing of the urethral opening makes passing urine difficult. Men may describe passing a very thin stream of urine.

With symptoms of chronic itching and discomfort, the effects Lichen Sclerosus has on people's sex lives, and the fact that there's no cure, it's not surprising that some people also become depressed as a result of their on-going problem.

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It can also affect other parts of the body too. Although this doesn't happen often when it does it's usually the upper back and shoulders where it appears. The white spots look like tissue paper and feel waxy to the touch.

How do you treat it?

Once the diagnosis is made many people describe feeling somewhat better in themselves. Feeling that at last they've been taken seriously, that their problem is real and not in their mind as some may have believed, and that something can be done to alleviate their symptoms. This helps to create a positive attitude which is an essential part of treatment for chronic diseases such as this.

The mainstay of treatment is the use of steroid creams, which are used initially for a period of three months and then used as needed. Moisturising creams help soothe the skin and sometimes anaesthetic creams or gels are beneficial. Healthy skin needs vitamins C and E, and zinc, so the diet should be abundant in these.

[Karl Note: This is the usual drug approach and will prove to be harmful to anyone who uses it. The proper treatment is described above.]

Antibiotics are needed when infection is present and anti-fungal treatments for thrush.

Although Lichen Sclerosus is said to resolve spontaneously after a number of years it tends to cause physical damage in the meantime. This damage often needs repairing with surgical operations. Vulva cancer is more common in women with Lichen Sclerosus and for this reason it is recommended that they are seen by a specialist every year or so.  


 


Source

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Child sexual abuse enquiries and unrecognised vulval lichen sclerosus et atrophicus

P L Wood and T Bevan Find that unrecognised vulval dystrophy in young girls may wrongly suggest childhood sexual abuse

Lichen sclerosus et atrophicus in young girls can present as haemorrhagic areas on the vulva. Failure to consider this diagnosis and to treat the condition appropriately may lead to a mis diagnosis of child sexual abuse, resulting in a lengthy and distressing investigation for all concerned, particularly the parents. There was extensive publicity surrounding these issues in the United Kingdom after events in Cleveland in 1987. We present three patients with lichen sclerosis et atrophicus. In each case, investigations into child sexual abuse had been instigated before an appropriate referral and correct diagnosis were made.

Case reports

Case 1
A 6 year old girl was admitted to hospital as an emergency under the care of the pae diatricians. There was a history of a suspected accidental fall, after which the girl's mother noticed blood staining on her daughter's underwear. The girl lived with her mother and her mother's partner and visited her natural father once a week.

The local social services department had already been involved about six months previously because of a history of suspected, unexplained perineal trauma. At that time, after a visit to her father, the girl had complained of soreness around the vulva, and a brown discharge had been noticed on her underwear. The girl's mother had described continuing vaginal ulceration which did not heal completely. The symptoms had persisted despite antibiotic treatment, acyclovir for suspected genital herpes simplex infection (which prompted further investigation because of the association with child sexual abuse), and reassurance. The child protection investigations had proved inconclusive, and the child's mother had been particularly upset at the failure to define the problem.

Physical examination in hospital showed two bruises less than 0.5 cm in diameter on the left labia minora, a transverse tear of the upper part of the clitoris, a superficial skin laceration between the labia minora and labia majora, and two scratch marks on the right labia minora. The findings were considered to be accidental, but the girl's mother remained concerned by the fact that there was no resolution to a condition that had been continuing for some months, and a gynaecological opinion was sought.

The girl attended a paediatric gynaecology clinic. A history of vulval soreness spanning one year was elicited. Clinical examination showed findings compatible with lichen sclerosus et atrophicus that is, ivory or white areas of hypopigmentation (often affecting vulval and perianal areas in a figure of eight pattern); a tendency to fine wrinkling; and areas of bruising or blistering (figure). Topical treatment with 1% hydrocortisone cream was begun, to good effect. Anaerobic bacteria were cultured on vaginal swabs, and this infection was treated with metronidazole. The girl's symptoms improved with the treatment, and the vulval dystrophy resolved. Because social services had been involved with the case, they were notified about the diagnosis (with the Mother's consent).

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Typical vulval changes of lichen sclerosus et atrophicus in a young girl

Case 2
A general practitioner telephoned the paediatric gynaecology clinic about a patient- a 6 year old girl whose condition might be explained by "abuse of some sort." He had identified bleeding from the labial area and at follow up had noticed bruising of the labia and introitus.

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The girl attended the paediatric gynaecology clinic with both parents. She had complained of soreness on one occasion only-while being dried after a bath supervised by her father, who had noticed redness of the vulva. The girl had no other symptoms. Physical examination showed some clitoral oedema, bilateral bruising of the labial edges, and an overall pale appearance. She had continued to have intermittent vulval bruising despite antifungal cream prescribed by the general practitioner and a course of metronidazole for an infection of anaerobic organisms cultured on a vaginal swab. The abnormal vulval appearances resolved after a course of 1% hydrocortisone cream, initially applied twice daily.

Case 3
A 4 year old girl with a history of vulval infections over the previous 9-10 months was referred to the paediatric gynaecology clinic by her general practitioner. The infections had been associated with bruising and a "blood blister," and her family had wondered about the possibility of sexual abuse to the extent that her father had telephoned social services for help and advice. The parents had noticed that their daughter had been lying on top of her teddy bear and rubbing herself. She had had several episodes of these symptoms, which were treated with courses of antibiotics. The girl's general practitioner remarked that she had been shocked by the vulval redness, inflammation, bruising, and ulceration. The child's parents were anxious and distressed and requested a further opinion.

Physical examination at the paediatric gynaecology clinic showed the typical changes of lichen sclerosus et atrophicus. The girl was treated successfully with 1% hydrocortisone cream.

Comment

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Lichen sclerosus et atrophicus generally affects the anogenital region. It is most often found in women but is also seen in young girls and was first reported in young girls about 30 years ago.1 Because the condition is uncommon before puberty, however, general practitioners and paediatricians who have not come across lichen sclerosus et atrophicus in children may have a low index of suspicion and may fail to recognise the typical appearances. This lack of awareness persists despite recent reports highlighting the existence of the condition in children and noting confusion with regard to the misdiagnosis of childhood sexual abuse, of which there is an increased general awareness.2,3

The symptoms of itching and soreness can be troublesome, and a young child may try various ways of obtaining relief, some of which may be mistakenly interpreted as masturbatory behaviour.4 Masturbation is not uncommon in children,5 but rubbing may lead to concerns over possible sexual abuse if it is perceived as inappropriate childhood behaviour.

The appearances of lichen sclerosus et atrophicus include localised haemorrhages (figure).6 A clue to the true diagnosis is the delineation of thinned skin, which gives a well demarcated parchment-type appearance, often in an hourglass shape.

The presence of lichen sclerosus et atrophicus may, in itself, increase the susceptibility to trauma, since the skin becomes thin and easily damaged. As a result, the effect of minor injuries may be magnified-for example, wiping with toilet tissue may cause bruising.3

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Vulval bruising, which is not always accompanied by the more typical symptoms of lichen sclerosus et atrophicus such as soreness or pruritus, can raise suspicions of possible childhood sexual abuse. These suspicions warrant an appropriate investigation, which can be upsetting for all concerned. Failure to recognise that the underlying changes are caused by lichen sclerosus et atrophicus, and to treat these accordingly, can therefore lead to inappropriate investigations. Nevertheless, the condition and sexual abuse may coexist. Hymenal trauma is an important marker in helping to determine whether sexual abuse has occurred, regardless of the presence of lichen sclerosus et atrophicus.7 Expert diagnosis is necessary to ensure a correct diagnosis, relevant further investigations, and treatment (box).

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Differential diagnoses
  • Lichen sclerosus et atrophicus
  • Vulvovaginitis
  • Psoriasis
  • Eczema
  • Contact dermatitis
  • Sexual abuse
  • Trauma
  • Systemic illness (for example, Stevens-Johnson syndrome)

All the families concerned in these cases were greatly relieved when the correct diagnosis was identified. There was also a degree of upset and resentment that a child sexual abuse inquiry had unnecessarily been initiated because of a failure to recognise the underlying disorder. The misdiagnosis of lichen sclerosus et atrophicus in young girls remains a problem. Despite previous published reports, general practitioners and paediatricians are still failing to consider the diagnosis or recognise its typical appearances. Contributors: Both authors were involved in the care of the patients. TB carried out the literature searches; PLW wrote the paper and will be guarantor.

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P L Wood consultant
T Bevan paediatric nurse
Paediatric and Adolescent Gynaecology Clinic, Kettering General Hospital NHS Trust, Kettering NN16 8UZ
 

  1. Clark JA, Muller SA. Lichen sclerosus et atrophicus in children. Arch Dermatol 1967;95:476-82.
  2. Handfield-Jones SE, Hinde FRJ, Kennedy CTC. Lichen sclerosus et atrophicus in children misdiagnosed as sex- ual abuse. BMJ 1987;294:1404-5.
  3. Bays J, Jenny C. Genital and anal conditions confused with child sexual abuse trauma. Am J Dis Children 1990;144:1319-22.
  4. Levene MI, ed. Jolly's diseases of children. 6th ed. Oxford: Blackwell Scientific, 1991.
  5. Hull D, Johnston D, eds. Essential paediatrics. 3rd ed. Edinburgh: Churchill Livingstone, 1993.
  6. DiSilverio A, Serri F. Generalised bullous and haemor- rhagic lichen sclerosus et atrophicus. Br J Dermatol 1975;93:215-7.
  7. Warrington SA, de San Lazaro C. Lichen sclerosus et atrophicus and sexual abuse. Arch Dis Child 1996;75:512-6.



 

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Vulval lichen sclerosus and lichen planus

The CancerBACUP Factsheet


This factsheet has been written to give you information about two particular skin conditions, lichen sclerosus and lichen planus, which can affect the vulva and may occasionally develop into cancer after many years. Only a small number of women with lichen sclerosus or lichen planus (around 3-5%) will develop a vulval cancer. This factsheet discusses these conditions and their treatments.

If you would like further information please phone CancerBACUP's Cancer Support Service on 020 7613 2121 or Freephone 0808 800 1234 and speak to one of the specialist cancer nurses.

The vulva

The vulva is the term that describes a woman's external genital area. It includes two large, hair-covered folds of skin called the labia majora, which surround two thin and delicate folds called the labia minora. The labia majora and labia minora surround the opening of the vagina (birth canal) and the urethra (the tube through which urine is passed). The clitoris is positioned above the vagina and urethra: this small structure is very sensitive and helps a woman to reach sexual climax (orgasm). The anus (opening to the back passage) is separated from the vulva by an area of skin called the perineum.

What are vulval lichen sclerosus (LS) and lichen planus (LP)?

LS and LP are fairly common, non-cancerous skin conditions, which can occur in the skin on any part of the body. They can affect children as well as adults. These changes are not cancer, but in a few people they may, over many years, develop into a type of skin cancer known as squamous cell cancer. In vulval LS and LP changes occur in the skin of the vulva. It is a slowly developing, inflammation of the skin in the vulval area which can be controlled by treatment, but cannot be cured.

Causes of lichen sclerosus and lichen planus

The causes are not known, but some women with these conditions have other family members with LS or LP. They are more common in older women, and in women who have auto-immune illnesses such as thyroid problems or pernicious anaemia. It is not possible to get LS or LP through sexual intercourse: neither are sexually transmitted disease and they are not infectious.

Signs and symptoms

The skin in the affected areas is very itchy and sore, with an abnormal appearance and a change in colour. The skin becomes more fragile than normal skin and may split, causing stinging and pain. The vulva may become distorted, causing a change in the shape or size. Occasionally this leads to difficulties with passing urine or having sexual intercourse. The vagina may become narrowed and sexual intercourse may become uncomfortable. The symptoms vary from woman to woman and some women with these conditions have no symptoms at all. In this case the conditions may be discovered during medical examinations for other health problems.

The above symptoms can be caused by conditions other than LP or LS. If you have any of the above symptoms, let your doctor know. Your doctor can then examine you and refer you to a doctor who specialises in women's health (gynaecologist).

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How is it diagnosed?

As the signs and symptoms of LS and LP can vary and are similar to other conditions of the vulva, it is necessary to take a small sample of cells from the affected area to examine under a microscope. This is known as a biopsy and is done in the out-patient department. An anaesthetic cream is usually used to numb the vulval area before the biopsy is taken and it takes 20 minutes to work. Local anaesthetic is then injected into the area, using a small needle. Sometimes a general anaesthetic may be given. A sample of cells (about the size of a peppercorn) is then taken from the vulva, using a biopsy tool.

Treatment

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Often no treatment will be needed, but if you have severe LS or LP you will need to see your doctor regularly. If the symptoms such as itching or soreness begin to become troublesome, it can help to use a non-perfumed moisturiser instead of soap in the vulval area. A type of steroid ointment (clobetasol proprionate, called Dermovate) can be prescribed by your doctor and is often used twice a day for 3 months. After this your doctor may recommend you to use the cream twice a week. This treatment is safe, can often control the symptoms very well, and can help women go back to a normal life, but it will not get rid of the condition completely. The treatment can make the skin more supple and so can help to make intercourse easier.

[Karl Note: This is the usual drug approach and will prove to be harmful to anyone who uses it. The proper treatment is described above.]

Rarely, the lichen sclerosus or lichen planus can cause a skin ulcer or sore which does not heal and laser surgery may then be used to remove the affected areas of skin. The laser surgery is usually done in the outpatients clinic. Your doctor can tell you how much skin will need to be removed and how this may affect you. It is important to discuss this with your gynaecologist before you have the treatment.

Follow-up

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As lichen sclerosus or lichen planus are long term conditions which cannot be completely cured you will be seen by your specialist regularly, as they may continue to cause symptoms. Women who have had either of these conditions for many years have a small risk of developing a vulval cancer. This usually occurs in women in their 60's to 90's rather than in younger women. It is important to see your doctor or nurse regularly to check for any signs of a cancer developing so that treatment can be given at an early stage when there is a high chance of cure.

Your feelings

Many women feel frightened when they are first told that they have lichen sclerosus or lichen planus, and worry that they may develop cancer. You may find the treatments embarrassing and frightening, and may feel tense, tearful, or withdrawn. At times these feelings can be overwhelming and hard to control. Everyone has their own way of coping with difficult situations. Some people find it helpful to talk to friends or family, while others prefer to seek help from people outside their situation. Others may prefer to keep their feelings to themselves. There is no right or wrong way to cope, but help is available if you need it.

Useful organisations

National Lichen Sclerosus Support Group
2 Ivy House, Wantage Road, Great Shefford
Berkshire RG17 7DA
Website: www.lichensclerosus.org
Provides emotional support and general information on a one to one basis (initially by letter - please send SAE). Some telephone support can be arranged by arrangement thereafter.

The Vulval Pain Society
PO Box 514, Slough, Berkshire SL1 2BP
Website: www.vul-pain.dircon.co.uk
A voluntary organisation run by a doctor and nurse, the society gives information and support to women with any vulval condition. Membership is £10 per year. It has a newsletter which gives members a chance to share their experiences, liaise with other women, and ask questions relating to vulval conditions. Non-members making enquiries should enclose an SAE.

For more information call CancerBACUP's Cancer Support Service on 020 7613 2121 or Freephone 0808 800 1234 to speak to a cancer specialist nurse. Lines are open Monday-Friday, 9am-7pm.

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This factsheet has been compiled using information from a number of reliable sources including the Oxford Textbook of Oncology, Souhami and Tobias and The Textbook of Uncommon Cancers. Each CancerBACUP factsheet is regularly reviewed and updated by cancer doctors, specialist nurses, other relevant health professionals and people with cancer.

Last reviewed/updated: December 2001

© CancerBACUP 2001, DCIS. All rights reserved. No part of this publication may be reproduced or transmitted, in any form or by any means, electronic or mechanical, including photocopying, recording, or any information storage and retrieval system, without permission in writing from CancerBACUP. British Association of Cancer United Patients, 3 Bath Place, Rivington Street, London EC2A 3JR. Charity Registration No. 1019719. A company limited by guarantee. Registered in England and Wales. Company No. 2803321. Registered office as above.

 

© CANCERBACUP 2001 VULVAL LICHEN SCLEROSUS AND LICHEN PLANUS. All rights reserved. No parts of this publication may be reproduced or transmitted, in any form by any means, electronic or mechanical, including photocopying, recording, or any information storage an retrieval system, without permission in writing from CancerBACUP, 3 Bath Place, Rivington Street, London, EC2A 3JR. Charity Registration No.1019719. A company limited by guarantee. Registered in England and Wales. Company No. 2803321. Registered office as above.

 
 
 

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